Oncologists Share Personal Battles Fighting Cancer in Their Own Children
Two Israeli oncologists have shared their deeply personal and challenging experiences of treating their own children for cancer, highlighting the profound emotional and professional impact of such diagnoses. Dr. Yair Hazkiyahou-Steinberg, an oncology resident at Sheba Medical Center, faced the devastating news when his one-year-old daughter, Mika, was diagnosed with neuroblastoma. The diagnosis came after weeks of uncertainty and pain, leading to immediate hospitalization and treatment at Schneider Children's Medical Center. Dr. Hazkiyahou-Steinberg described the initial shock and disbelief, stating, "It was a very hard blow." He explained that while his professional knowledge was invaluable, it couldn't fully prepare him for the emotional toll of fighting for his child's life.
The experience significantly impacted his career, delaying his doctoral studies and those of his wife, Karina. He noted the difficulty in returning to a semblance of normalcy, as the constant medical follow-ups and the lingering psychological effects of the ordeal create a state akin to post-traumatic stress. The family openly discussed Mika's illness with her, using age-appropriate language and resources like a children's book about a lion cub with cancer. They made efforts to ensure Mika could still experience childhood, even resorting to disinfecting playground equipment for late-night visits.
Dr. Hila Nobel, an adult oncology resident, experienced a similar ordeal when her elder daughter, Eve, was diagnosed with neuroblastoma at 15 months old. Eve underwent complex treatments, including surgery, and a lengthy rehabilitation, eventually overcoming the disease. However, the family faced another blow years later when their younger daughter, Maya, was diagnosed with leukemia at a similar age. Maya is currently undergoing treatment and is also attending the "Dream Garden" program.
Dr. Nobel described the second diagnosis as a profound "déjà vu," despite Maya having a different type of cancer. She highlighted the added complexity of managing two children's illnesses while also caring for other siblings. The family maintained an open approach, informing their children about Maya's condition and treatment in an age-appropriate manner. Dr. Nobel temporarily halted her residency to focus on her daughters' care, emphasizing that the experience has deepened her empathy as a physician.
Both doctors stressed that the journey extends far beyond the medical treatments, involving significant bureaucracy, fear, and uncertainty. They emphasized the importance of support systems like the "Dream Garden" program by the "Bigs from Life" association, which provides educational and rehabilitative frameworks for children with cancer and their families. Efrat Lichtman, CEO of "Bigs from Life," stated that the program aims to help children continue to be children, fostering play, learning, and development amidst their challenging circumstances.
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